Disability Rights UK E-Newsletter 10 December 2018

Disability Rights UK news


Our free newsletter keeps you up to date with the work we do and the work of our members.



DR UK welcomes the opportunity to administer the EnAble Fund: Commenting on the announcement of the £250,000 fund to support disabled people to get involved in elected office, Sue Bott from Disability Rights UK (which is administering the fund) said:

“We’re pleased to see the government creating this fund, which will help support disabled people run for elected office in 2019. Being involved in local politics is a concrete way for disabled people to get involved in their local communities, as well as being politically active.”

For more information about the Fund go to www.disabilityrightsuk.org/enablefund

Meet Clenton Farquharson MBE – our new Ambassador: Clenton is a well-established and highly reputed coach, trainer and consultant and an active member and Chair of Think Local Act Personal and member of the National Co-production Advisory Group. He is also a member of The Coalition for Collaborative Care (C4CC) and director of Community Navigator Services. We look forward to engaging Clenton in our work, and together continue to make rights and equality a reality for all disabled people. Find out more and view video

Policy Pathways to Justice in Energy Efficiency: This new report will be launched Tuesday 11 December 2.00 – 4.00pm, Committee Room 6, House of Commons. The project has explored some of the key gaps in knowledge regarding justice in energy efficiency policy in the UK and focused on the impact of energy efficiency policies on disabled people, those with long term illnesses and low-income households with children. Deputy CEO Sue Bott will be speaking at this event. Find out more

May Rail Timetable Chaos blamed on system wide failure – Impact on disabled rail passengers significant: The Parliamentary Transport Select Committee says in its December report that swift reform is needed to restore passenger trust in railways and this must include effective contingency plans and stringent enforcement for disabled passengers. DR UK Ambassador and Rail Sector Champion Stephen Brookes, who gave evidence to the committee was in total agreement with their report and endorsed the fact that the current industry decision making process is not fit for purpose. Read more

Excess winter deaths hit record high at over fifty thousand: Figures released by the Office for National Statistics estimate that in 2017/18 there were an estimated 50,100 excess winter deaths between December and March in England and Wales. DR UK is a member of the End Fuel Poverty Coalition, which calls on government to take urgent action to deliver the energy efficiency improvements to people’s homes that are so sorely needed. Read more


Members, projects and partners



New Right to Participate stories: “I was diagnosed with discord lupus, thyroid disorder, degenerative disc disorder, widespread skeletal pain due to untreated benign joint hypomobility with resulting fibromylgia. Despite all of these results being sent to my GPs all they put in my opening box was depression… that was all! Once you are treated or perceived as malingering you are neglected. If GPs can do this in their practice it’s not hard for GPs to do this in other environments.”

One of five new stories posted on our Right to Participate website. Find out how you can use the Equality Act, to protect you from discrimination in everyday situations.

  • Take Action – read how you can assert your rights in everyday situations.
  • Stories – read how disabled people have faced discrimination and what they’ve done about it.
  • Share your story – your story, your way. Whether it’s text, audio, video or image share a story with us and help empower other disabled people to take action.

Tell us about your care: Recently visited your GP or been to hospital? We would like to hear about your experience! Phone 0330 995 0400 or go here

Changing Places accessible toilets to be brought to the majority of motorway service areas: A new partnership with DR UK member charity Muscular Dystrophy UK (MDUK) and the Department for Transport will bring Changing Places accessible toilets to the majority of motorway service areas — making journeys easier for disabled people across England. Read more

Love it or hate it? Here’s your chance to Rate it! Rate it! is a DRILL funded website that offers disabled and older people a space to share their views and reviews of products that can help to make life easier. https://rateit.ridc.org.uk/

GOGA at Canterbury Christchurch University: Sarah Johnson, Get Out Get Active Peer (GOGA) Support Lead at Disability Rights UK was asked to provide information about GOGA. You can find out more and view pictures taken on the day. Get Out Get Active supports disabled and non-disabled people to enjoy being active together. If you want to find out more, please contact Sarah on 0207 250 8111 or email Sarah.Johnson@disabilityrightsuk.org



DR UK Fundraising, products and training courses



Why not use Amazon Smile or easyfundraising for your Christmas shopping: Disability Rights UK has signed up to both AmazonSmile and easyfundraising. Shop using either of these and a percentage of what you spend is passed to Disability Rights UK at no additional cost to you – you still get the same great deals.

See our shop offers:

Factsheets, Guides and Information: For further information on welfare rights, education issues and social care you will find our factsheets/guides here or for more detailed information you can order a copy of the Disability Rights Handbook from our shop

Free training on Inclusive Practice in careers: Disability Rights UK is offering a free one-day training day designed for school careers advisers, coordinators and school careers leaders in Birmingham on 15 January 2019. The training is for those who wish to develop their understanding of disability equality and enhance their skills to support disabled learners with careers guidance and careers planning. Find out more


Other news



BBC launches new disability mentoring and training programme: They are offering ten places to help with the development of disabled talent from across the creative industry, as well as supporting the career progression of disabled colleagues within BBC Studios. Find out more

Pact’s Indie Diversity Training Scheme: This scheme offers a first step into the television industry. You could be a trainee Development Researcher supporting the creative process, an office Runner helping production teams, or assisting on location. Closes 14 December. Find out more

Want to influence the accessibility of the travel industry? Take a travel survey and earn £10 to Amazon. Drop your email in the linked form below to receive a personal invitation to take it. It’s open to people with mobility disabilities (or their family members/caregivers) in the UK (and also Canada and Australia).


Disabled user experience on England’s motorways and major A roads: A new transportfocus report uncovers the barriers disabled people encounter when travelling on roads managed by Highways England. Find out more

NAO report says Motability scheme excellent but why £2.62 billion in reserves? The National Audit Office (NAO) has found that the Motability scheme provides an excellent service to customers, but has long operated in a protected environment, supported by government, which has made maintaining high performance less challenging. Read more

New aviation passenger charter to improve flying experience for disabled travellers: The Civil Aviation Authority (CAA) will monitor and review performance against the charter and take action if improvements aren’t made voluntarily. The charter will also set out service level standards for complaints and for claims for compensation when flights are disrupted. Read more

Everyone Can survey on leisure sector provision for disabled people: Everyone Can is a new campaign led by Sport England, ukactive and several leading disability organisations.

Everyone Can would like to change perceptions about disabled peoples’ participation in physical activity and support the leisure sector to become more inclusive. They would like anybody who works within the leisure industry to answer a quick survey. Find out more

DBC UC survey: The Disability Benefits Consortium (DBC) has launched a Universal Credit survey so that they can find out more about the experiences of disabled people and people with long term health conditions. Find out more

Consultation to decide products which should not be routinely prescribed: A national public consultation has been launched on proposals to update and review commissioning guidance on eight more products that cost the NHS more than £68 million – which NHS England is recommending should not be routinely prescribed in primary care, because there are alternative products. The consultation closes 28 February 2019. Find out more

Government health and care preparations for a No Deal scenario: Matt Hancock MP Secretary of State for Health and Social Care has produced an update of measures that the government will implement in the event of a ‘no deal scenario’. Read more





Getting to DR UK at Plexel: Free shuttle buses run from Stratford underground, train and bus stations from 7am to 10.30pm.

Free shuttle buses run from Stratford underground, train and bus stations from 7am to 10.30pm. There are two pickup points for the shuttle bus:

  • Bus stop E outside Stratford International Station
  • Bus stop X outside Stratford City Station/Westfield

Shuttles run every 5-10 minutes.

For more information see our Contact us page


Disability Rights UK

Plexal 14 East Bay Lane Here East, Queen Elizabeth Olympic Park Stratford, LondonE20 3BS United Kingdom

0330 995 0400


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