Disability Rights UK E-Newsletter 4 February 2019

Disability Rights UK news


Our free newsletter keeps you up to date with the work we do and the work of our members.



You don’t have to be for or against Brexit to take an interest in independent living across Europe:  ENIL is the European Network on Independent Living. ENIL members include members from non-EU countries as well as EU countries. Disability Rights UK is a member.

View ENIL on Brexit

View ENILs latest update

New Universal Personalised Care Model launched: This model has been developed collaboratively with partners from across national and local government, and organisations from across health, care, voluntary and community-based sectors, as well as with people with lived experience. Our Deputy CEO Sue Bott says: “DR UK are very pleased to have had the opportunity of contributing to the development of the personalised care model, building on the experiences of all those disabled people who have fought for independent living over the years…”Read more

Shock and anger at government’s failure to invite DPOs to disability workshop: DR UK has signed a letter, from a Coalition of Disabled People’s Organisations (DPOs), to the Cabinet Office about a workshop on the barriers facing disabled people, which failed to invite any actual DPOs. Read the letter

ODI looking for new people for Regional Stakeholder Network: DR UK Deputy CEO Sue Bott, says, “it’s hard to take the government’s stated aim of reducing the disability employment gap seriously when it expects us to work for nothing on government projects.” Read more


Members, projects and partners



Our Right to Participate Project:  Find out how you can use the Equality Act, to take action to protect you from discrimination in everyday situations. Share your story and read the stories of other disabled people who have faced discrimination and what they’ve done about it.

The EnAble Fund for Elected Office: Thisis intended to cover the additional financial costs associated with a disability, that would otherwise prevent someone from seeking elected office. The Fund is administered by Disability Rights UK.For more information, go to www.disabilityrightsuk.org/enablefund

Now that the winter weather is really biting, disabled people and those living with long-term health conditions often need more from the NHS or care services:  Disability Rights UK have been asked by the regulator of the NHS in England – the Care Quality Commission (CQC) – to encourage our readers to share with them their experiences when they use the NHS, as the CQC wish to develop services with a greater understanding of disabled people and their needs.  You can complete the ‘Tell Us About Your Care’ survey online via this link, or if you would prefer to provide your experience by telephone, please call 0330 995 0400, choose Option 1 and quote ‘CQC’, the quietest times are between 11 am and 5 pm, Monday – Friday only.

Change Health Inclusion Days: CHANGE is working with NHS Business Services Authority to help make their services more accessible. They are running two Health Inclusion Day events in Leeds on 30 January 2019 and London on 11 February 2019. Download the easy read information


DR UK Fundraising, products and training courses



Our new handbook is available for pre-order! Everything you need to know about benefits and social care. First come, first served. Pre-order now

Factsheets, Guides and Information

Universal credit has now been fully rolled out for new claimants. Because of this, most (but not all) people cannot claim the older legacy benefits. We have introduced a new factsheet – legacy benefits and universal credit to explain this.

Our income support and tax credits factsheets have been retired. In addition, we have updated the following factsheets in line with the new changes to claiming:

For further information on welfare rights, education issues and social care you will find our factsheets/guides here

DR UK Training:

We still have some places available on this free workshop.

The event is designed for any Disabled People’s Organisation (DPO) which would like to gain a basic understanding of Social Investment – what Social Investment is and what it is most useful for DPOs to know.

We can cover travel costs for smaller organisations with limited budgets.


Other news



Online abuse and the experience of disabled people: This new Petitions Committee report shows the high level of abuse that disabled people receive online. It agrees with Katie Price’s petition that the law on online abuse is not fit for purpose. Read more

Social Care Digital Innovation Programme 2019-2021 Prospectus: The LGA in collaboration with NHS Digital is grant funding digital innovation in social care, with projects ranging from new assistive technology to data analytics to predict demand. Apply now for the third wave of the programme – deadline to apply is 7 March 2019. Find out more

Disabled leaseholders win court victory over home adaptations: The Cardiff County Court has ruled that a landlord acted unlawfully by refusing to allow a disabled homeowner to make necessary adaptations to her home. Read more

Only 56% of Social Security Tribunal venues have recording equipment: This is according to a response to a Freedom of Information Request made by the International Disability Law Clinic at the School of Law, Leeds University. England has the worst record and there is no recording equipment at all in London venues Read more

Do No Harm Lobby: Disabled activists are hoping to use the Do No Harm lobby, in parliament, on 13 February to persuade more MPs that action must be taken to prevent further deaths caused by the government’s much-criticised fitness for work test. Get your MP to attend

DWP home visits: The Department for Work and Pensions (DWP) Visiting Team can visit you at home to help you with your benefit claim. Find out more

Spring statement date: The government will publish its Spring Statement on Wednesday 13 March 2019





Getting to DR UK at Plexel: Free shuttle buses run from Stratford underground, train and bus stations from 7am to 10.30pm.

Free shuttle buses run from Stratford underground, train and bus stations from 7am to 10.30pm. There are two pickup points for the shuttle bus:

  • Bus stop E outside Stratford International Station
  • Bus stop X outside Stratford City Station/Westfield

Shuttles run every 5-10 minutes.

For more information see our Contact us page


Disability Rights UK

Plexal 14 East Bay Lane Here East, Queen Elizabeth Olympic Park Stratford, LondonE20 3BS United Kingdom

0330 995 0400


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