Independent Living – Welcome to the latest Independent Living news roundup.

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Welcome to the latest Independent Living news roundup.
17.04.19 Contents:
PIP & ESA appeals online
What’s up at Remap?
Better Care Fund 2019/20
Hoists from Bakare
Parkinson’s brings discrimination
Latest – Changing Places; Still no green paper…
1. PIP & ESA appeals online

Changes to the benefits tribunal service are being extended this month, and more people will find themselves starting their appeals against PIP and ESA decisions online.

Known as Continuous Online Resolution, the first areas where it will be trialled are Midlands, Sutton and North-West Tribunal Panels. Appellants will be invited to participate on a rolling basis in groups of 50.

You can read the latest on PIP & ESA appeals here

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2. What’s up at Remap?

We are approaching Awards time at Remap once more, and I am delighted to say that I am on the judging panel this year.

Which means that I get a close look at some of the ingenious one-off solutions their volunteers have come up with recently, and then have the more challenging task of helping to decide which of them should be award winners…

My lips are sealed on this year’s contenders, but while you’re waiting, why not take a look at some of the highlights from 2018?

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3. Better Care Fund 2019/20

The policy framework for the Better Care Fund 2019 – 2020 has recently been published.

The purpose of the fund is to integrate health, social care and housing in such a way that people can be provided with integrated services which help to prevent ill-health where possible, maintain independence and prevent avoidable hospital admissions.

You can read more here

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4. Hoists from Bakare

Bakare is well known for providing adjustable, profiling beds and paediatric care cots. They have been doing so since 1993.

But you may not know that they also supply and install overhead hoists. Cost-effective solutions which can accommodate such challenges as lowered ceilings, dado rails and skirting boards. And once installed, room to room transfers need just one carer.

Read more here

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5. Parkinson’s brings discrimination

Parkinson’s UK has published the largest ever survey of people living with the condition, which reveals the shocking extent to which they also live with harassment and discrimination on a day-to-day basis.

Although Parkinson’s is the second most common neurodegenerative condition after Alzheimer’s, people in general know little about it, beyond one of its symptoms – tremor – and therefore don’t regard it as very serious.

Steve Ford, shown here, is chief executive of Parkinson’s UK, and is promoting their campaign to raise awareness and stop people with Parkinson’s having to live with ignorance and unkindness.

Read more here

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6. Latest – Changing Places; Still no green paper…

Changing Places at motorway service stations - applications can now be made for a share of a £2 million fund which will be allocated by the Department of Transport in partnership with Muscular Dystrophy UK.

It is part of the government’s Inclusive Transport Strategy, which aims to provide equal access to the transport network by 2030.

We all know that adult social care is in crisis; 1.4 million frail elderly people not getting the help they need with basic everyday tasks. Just imagine how that feels.

The government’s solution? Well, the long-awaited Green Paper has now missed its most recent deadline for publication, 1st April – I wonder whether that date was chosen on purpose. Rather than giving themselves another target to miss, the Department of Health and Social Care now just says it will be along “in due course”. So that’s all right then.

Don’t forget that you can apply to join the Independent Living Facebook group, if you would like to spend more time discussing these themes with other interested people.

There are various ways you can get in touch with us: email me; visit our Facebook page and leave a message there; or if it’s short and sweet, Tweet!

Previous newsletters are archived here.

If you are reading a copy of the Independent Living newsletter that has been passed on to you by a colleague or friend, why not sign up for your own free subscription – it’s quick and easy, and won’t lead to your inbox being bombarded with other stuff!

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Until next time, best wishes,


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Frances Leckie

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t: +44 (0) 208 133 0628
Skype: francesleckie

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