Disability Rights UK E-Newsletter 27th August 2019

Our free newsletter keeps you up to date with the work we do, the work of our members and news from the sector.

If you’re a member organisation and wish to submit an article for consideration, email members@disabilityrightsuk.org.


‘On Being Able to Walk Twenty Metres: The Introduction of Personal Independence Payments’




Peter Alldridge, Drapers’ Professor of Law at Queen Mary University London, has had a paper published in the September edition of Journal of Law and Society, “On Being Able to Walk Twenty Metres: The Introduction of Personal Independence Payments”. The article examines the implementation of PIP, including the treatment of the application of the author, and shows that the norms according to which DWP operates the benefit, are radically at variance with those in the Social Security (Personal Independence Payment) Regulations 2013. If you would like a copy of the article, please email anna.fahy@disabilityrightsuk.org


DPO survey



Disability Rights UK is keen to understand more about the current opportunities and challenges faced by local Disabled People’s Organisations (DPOs).

We’d like to know, for example, what could be done to improve communication from grassroots up and how DR UK can better support local organisations.

We’ve created a short survey to help us gather your views and suggestions, which can can be accessed here. The survey will take approximately 15 minutes to complete and we would appreciate any feedback from user-led organisations to help us plan and provide future services and partnerships


News roundup


Disability Rights UK mentioned in Forbes: Read more here

Improved NHS care for Parkinson’s, Multiple Sclerosis and Motor Neurone Disease to save 2,500 hospital trips: People living with brain and nerve conditions like Parkinson’s could benefit from quicker diagnosis and better coordinated care as part of a new NHS initiative, which is also set to free up millions of pounds to reinvest in patient care. Read more

Anglia Ruskin University lobbying for Government funds: Anglia Ruskin Unviersity are hoping to lobby for Government funds to enable them to carry out a research-based study into the UK’s vision and hearing needs, with the aim of informing policy. Follow the campaign using the handle @UKNEHS and read the Case for Investment here.


Get Involved



Paralympic sprint champion Jonnie Peacock to mentor four disabled children in new Channel 4 series: Parents of children who regularly use a prosthetic leg to take part in sport are being invited to put forward their children’s names as potential participants. Parents who feel their child could benefit from being mentored by Jonnie can contact the production company, One Tribe TV, which is helping Jonnie set up the project. Contact mel@onetribetv.co.uk for more information.

Department for International Development (DFID) is recruiting for the Direct Scheme for Advisers (DESA): This is a great opportunity to join DFID on a permanent basis and progress in an advisory career in international development. DFID are looking to recruit more individuals with disability expertise and experience. Please see the attached flyer for more information. The closing date for applications is 11th September 2019.

BBC looking for people to take part in ‘Call That Hard Work?’: Electric Ray are making a new TV series for the BBC called ‘Call That Hard Work?’. It’s a light hearted programme that will see 3 people with different careers swap jobs for a day each. They will then rate the job out of 10. The person with the highest score is deemed as having the hardest job and wins a £1000 cash prize. Electric Ray are keen to ensure they are representing the diversity of the UK’s workforce. If you’re interested in taking part please call 0207 061 8584.

CHANGE are looking for members to join their committee: CHANGE is now looking for disabled people and people with learning disabilities to join the committee.The committee will oversee the work and plans for CHANGE and will work alongisde Advonet and their board of trustees. They are looking for people with a working knowledge of management, with good networks and knowledge of rights. The deadline for applications is the 9th September. Download the information pack or read the full statement.

Maritime and Coastguard Agency (MCA) want feedback from disabled passengers on ferry and cruise services: Read more and complete the survey here. .

Sharing and Celebrating Patient and Public Involvement in Healthcare Community Grants: NHS England and NHS Improvement’s ‘celebrating involvement in healthcare’ community grants scheme is now open for applications. Grants of up to £2500 are available to voluntary, community and social enterprise organisations to showcase how they have been involving patients, service users and the public in improving health services. Apply now


Members, projects and partners



Get Yourself Active: Students from two special teaching schools in Derby are staging the SHOUTaboutSEND 5k in October. Students from the schools are running the event from marketing and logistics to catering, as part of their employability curriculum. Find out more by clicking here.

DR UK is now recruiting for the 2019/20 cohort of its flagship Leadership Academy Programme (LAP): 80% of our delegates have gone on to achieve new promotion opportunities, joined committees or disability networks and seen an increase in their confidence, motivation and self-belief. Find out more.

Business Champions: DR UK are looking for Business Champions! Our champions will help us increase our impact in the business sector and provide us with feedback on ways we can better work with businesses. We are looking for those with an active interest in disability and a good level of experience in the corporate and/or public sector. If you are committed to creating a more equal society for disabled people, please do get in touch at anna.fahy@disabilityrightsuk.org

New publication launched: In collaboration with the Gatsby Education and the Careers and Enterprise Company we’ve launched “Good Career Guidance: Perspectives from the Special Educational Needs and Disabilities Sector”. It is available to read online or download here

Tell us about your care: The Care Quality Commission (CQC) are asking disabled people, those living with a long-term health condition, and their families to share their experiences through the Tell Us About Your Care survey. You can also call us to complete the survey on your behalf – 0330 995 0400 (afternoons are quietest), choose Option 1 and quote; ‘CQC’ when your call is answered.


Support our work by giving a monthly amount



DR UK is launching a campaign to create 50 key supporters who each give £20 per month. In this way we can build up a fighting fund to underpin all our core work supporting disadvantaged disabled people, for which we receive no government funding.

Whatever the amount, direct debit is the single most helpful and efficient way you can support our work:

-  £3.00 per month can provide a disabled person with life changing advice and guidance

- £10.00 will fund updating a DR UK factsheet to help thousands of disabled people get the support they need

- £20.00 per month can fund our policy team to influence the protection or extension of a key right in the daily lives of millions

Please sign up to give a regular monthly amount here.


Training and Consultancy



Benefits Overview Training: Sign up now! Our September course is already full and next availability is for 13th November. This course is for professionals looking to increase or update their knowledge of the benefits system – it is not for individual claimants.

Disability Confidence Training: if you are a manager wanting to increase your awareness and knowledge of supporting disabled colleagues – as members of staff, volunteers or young people on work experience then this course is for you. The next course will run on 9th September in central London.

Corporate Partnership Offer: we have recently revamped our corporate partnership offer so that it is both useful and cost effective for businesses of all sizes. Working in partnership with us is the best way to create a truly inclusive organisation. To find out more please contact anna.fahy@disabilityrightsuk.org

Reviewing your organisation’s factsheets: as part of its training and consultancy service, DR UK can check and update your organisation’s factsheets and benefits guides. We already do this for a number of health charities. To discuss your needs please contact anna.fahy@disabilityrightsuk.org


Publications and factsheets



Our new handbook has now been printed and is available to purchase! Everything you need to know about benefits and social care. First come, first served. Get yours now! If you’re an organisation, we can offer discounts for orders of 5 copies or more, email steve.newsham@disabilityrightsuk.org for more information.

Factsheets, Guides and Information: For information on welfare rights, education issues and social care, see our factsheets and guides.





Getting to DR UK at Plexel: Free shuttle buses run from Stratford underground, train and bus stations from 7am to 10.30pm.

Free shuttle buses run from Stratford underground, train and bus stations from 7am to 10.30pm. There are two pickup points for the shuttle bus:

  • Bus stop E outside Stratford International Station
  • Bus stop X outside Stratford City Station/Westfield

Shuttles run every 5-10 minutes.

For more information see our Contact us page


Disability Rights UK

Plexal 14 East Bay Lane Here East, Queen Elizabeth Olympic Park Stratford, LondonE20 3BS United Kingdom

0330 995 0400


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