Independent Living – Welcome to this week’s Independent Living roundup

Welcome to this week’s Independent Living news roundup.

07.10.20 Contents:

 What’s in store at CASCAIDr?

• CrowdJustice appeal for CHC

 EHRC Guidance for retailers

 Shine on Hydrocephalus

• OT posts at Designability

• Latest – My Disabled World

Belinda Schwehr, Founder of CASCAIDr

1. What’s in store at CASCAIDr?

As promised last week, you can now listen to the interview I recorded with Belinda Schwehr (left), founder of legal advice charity CASCAIDr.

Find out about the lows – and occasional highs – of the organisation’s struggle to bring fairness and legality to adult social care. What impact coronavirus has had, and why they are becoming a full-service charitable law firm. You may also find their unusual fundraising campaign very educational!

Read more and listen here

Crowdjustice appeal for NHS CHC challenge

2. CrowdJustice appeal for CHC

The scandalous postcode lottery of access to NHS Continuing Healthcare, also known as CHC, has left thousands of very ill, often elderly people without some £5 billion-worth of care funding to which they are legally entitled.

The redoubtable Philip Mathias, retired Rear Admiral and former Ministry of Defence official, is determined to hold the DHSC and NHS to account for their failings in this regard. He has just launched a CrowdJustice appeal to fund a judicial review.

EHRC Guidance for retailers

3. EHRC Guidance for retailers

I have been banging on here about access and inclusivity for what feels like forever. Retail operations in particular seem to present obstacles to customers with a disability who want to shop.

Finally – some guidance from the EHRC (Equality And Human Rights Commission) reminding retailers of their legal obligations, particularly in light of current conditions.

Find out more here

New Shine Charity resource on hydrocephalus

4. Shine on Hydrocephalus

Hydrocephalus is a build-up of fluid in the brain, which increases pressure there, often causing damage to the brain tissue. Some one in 1000 children are affected by the condition (which can also affect adults).

Nowadays, there is much greater understanding of hydrocephalus, its causes, effects and treatments. The charity Shine, which supports families of children with spina bifida and hydrocephalus, has just produced a useful free resource for parents and professionals.

Read more here about this often hidden disability

OT Posts at DesignAbility

5. OT Posts at Designability

Designability is a charity which has been creating and providing products that give disabled people greater independence and choice for over 50 years. You may have come across their brilliant Wizzybug, the fun powerchair designed for under-fives – and there are many more innovations to their credit.

They are now looking to recruit two OTs, one of whom will be their lead OT, as the current incumbent steps down after 20 years.

Occupational Therapists who would like to find out more, just click here.

Poetry competition - My Disabled World

6. Latest – My Disabled World

Disability Talk is a not-for-profit organisation founded in 2011 to champion the rights of disabled and vulnerable people.

It is currently running a poetry competition, “My Disabled World” with cash prizes for the winners and a charity of their choice. There’s still time to enter, if you are feeling poetic!

The judging panel is diverse and impressive, including Dame Evelyn Glennie, Martyn Sibley, Shadow Secretary of State for Women and Equalities Marsha de Cordova, and Minister for Disabled People, Justin Tomlinson.

More details on the Disability Talk website

Don’t forget that you can apply to join the Independent Living Facebook group, if you would like to spend more time discussing these themes with other interested people.

There are various ways you can get in touch with us: email me; visit our Facebook page and leave a message there; or if it’s short and sweet, Tweet!

Previous newsletters are archived here.

If you are reading a copy of the Independent Living newsletter that has been passed on to you by a colleague or friend, why not sign up for your own free subscription – it’s quick and easy, and won’t lead to your inbox being bombarded with other stuff.

That’s it until next week!

Thank you for reading and best wishes,


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Independent Living
Frances Leckie


t: +44 (0) 208 133 0628
Skype: francesleckie

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